There are some people that know of what my family has endured since 2021 with my son Koen. I didn’t speak of it with too many, because I knew that most would not understand, or want to understand, and possibly think I was a little nuts. What happened to Koen seemed unrealistic, yet it was very real. I was scared to tell, and instead when people became aware of the fact that Koen had a ‘condition’, it was never mentioned, in detail, what actually was …
